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Neurodivergence Campus
An educational platform exploring and empowering neurodivergent minds.
Level 3 Autism
Tailored support for each level of autism.
Why is Level 3 also called profound?
Level 3 autism, commonly referred to as profound autism, denotes a condition that necessitates the highest level of support and intervention. Individuals with Level 3 autism typically face significant challenges in communication, social interaction, and adaptive functioning that will be described here. They may have limited vocal skills and require substantial assistance with daily activities and routines. This level of autism is marked by noticeable behavioral difficulties, including intense reactions to sensory stimuli and challenges in interpreting social cues
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Supporting Individuals with
Profound Autism
​A respectful approach to supporting individuals with profound autism requires a compassionate, supportive environment tailored to their specific requirements, such as adapted communication methods and sensory-friendly spaces. Collaboration with caregivers, healthcare providers, and educators create this comprehensive support. Advocacy plays a crucial role in ensuring their voices are heard and their needs are met, fostering an inclusive and understanding community.
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Recognizing and celebrating their unique strengths is vital, alongside creating environments where they can thrive through education and awareness. By meeting them with empathy and providing necessary tools, we honor their individuality and support them in living fulfilling lives, enriching both their lives and the communities they are part of.
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The term "profound autism" has been utilized by advocates to highlight the intensity and complexity of symptoms faced by these individuals, with some suggesting that a separate diagnosis is warranted to better address their unique needs. However, regardless of terminology, the challenges faced by individuals with profound autism remain the same, requiring significant support and understanding. To the right is a detailed list of the most common and impactful challenges associated with profound autism.
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Strengths Still Exist at Level 3
That being said, the concept of presumed competence is vital to remember of those with a more profound presentation of autism. ​Presumed competence is the belief that individuals with profound autism, despite physical behaviors like stimming, repetitive movements, or limited vocal abilities, are capable of thinking, understanding, and learning. These external challenges often mask their potential, but many non-speaking individuals show great intelligence and expression when given alternative communication tools or supportive environments.
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Strengths - Key points
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Non-verbal or repetitive behaviors should never be equated with a lack of understanding or intelligence; these can be self-regulation methods, not limitations.
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Creating inclusive environments, offering adaptive tools like AAC devices, and focusing on strengths help individuals thrive.
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Real-life examples and advocates like Carly Fleischmann and Temple Grandin illustrate how presuming competence unlocks hidden potential. They also both serve as examples that we cannot assume what individuals' level of diagnoses are. People can be greatly impacted by their autism yet still lead communicative or professional lives.
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When we presume competence, we foster respect, inclusion, and opportunities, seeing individuals for their abilities rather than their challenges.
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​Communication Difficulties
Limited or absent vocal communication can hinder the expression of basic needs, leading to frustration and behavioral challenges.
Sensory Sensitivities
Overwhelming sensitivities to sounds, lights, or textures can cause significant anxiety and physical discomfort, making everyday environments challenging to navigate.
Behavioral Challenges
Self-injurious behaviors and aggression can be harmful and stressful for both the individual and caregivers, complicating care and requiring specialized interventions.
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Living Struggles
Difficulties with essential tasks like eating, dressing, and using the bathroom necessitate constant supervision and assistance, which can be exhausting for caregivers.
Social Isolation
Challenges in understanding social cues and initiating interactions can lead to feelings of loneliness and frustration, complicating social connections.
Emotional Dysregulation
Managing emotions like anxiety and anger can be difficult, often resulting in meltdowns that are traumatic for both the individual and caregiver.
Co-occurring Conditions
Presence of additional challenges such as intellectual disabilities, ADHD, or mental health issues can complicate support needs and treatment approaches.
Caregiver Stress
The constant vigilance, emotional strain, and financial burden of caregiving can lead to burnout and affect the caregiver's mental and physical health.
Lack of Independence
Dependence on others for daily tasks can impact self-esteem and quality of life, highlighting the need for strategies to promote autonomy.
Societal Stigma
Misunderstanding and prejudice from society can exacerbate challenges, making it harder for individuals and families to access understanding and support.
Level One
Requires Support
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Level Two
Requires Substantial Support
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Level Three
Requires Very Substantial Support