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Five Views of Autism

National-view: Under Development 

A United Approach?

Unpacking How the US Handles Autism at the Federal Level

Let’s be honest: autism research doesn’t exactly operate on a 24-hour news cycle. Meaningful findings take years—sometimes decades—to emerge, and it’s an ongoing challenge to help the public and policymakers understand why long-term investment is necessary. Translating slow, incremental science into everyday understanding requires patience and persistent communication.

 

At the same time, a significant shift is unfolding within federal education policy. The Department of Education is undergoing restructuring and realignment, with programs being reorganized and—and in some cases—moved to other federal partners. This isn’t a simple folding of the department, but a reorganization that could affect how funds flow, how accountability is measured, and how rights protections are enforced.

In this moment, foundational frameworks like the Individuals with Disabilities Education Act (IDEA) risk becoming destabilized not by a sudden abolition, but by funding adjustments, shifting oversight, and changes in civil rights enforcement capacities. If program administration and enforcement are retooled across agencies, the supports families rely on for autism—from early intervention to school-based services—could face realignment, delays, or new compliance expectations.

 

The stakes are high—not just for progress in research, but for preserving real protections and rights for autistic people in a landscape where that protection is already hard-won and often slow to materialize.

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